Thursday, May 28, 2020

What is the worth of Autism?

I got a late start today. Forgot to turn on my alarm last night. So my morning began the same as it always does only a few hours behind. Checking messages on JSNCreative. Scrolling through Facebook to see if there was anything to share to my page so I help give others ideas for what to do. See if there was anything that Doodle might want to try today. Last night was the night I had to finish all of Doodles camisoles. She loves wearing camisoles and she picked out lots of cute fabrics. I've been trying to finish up this project for months.

While scrolling through Facebook I noticed in the autism group that I'm in, someone shared that a YouTuber had "re-homed" their child on the spectrum. Hold up! How on earth do you re-home a child especially one with autism. I didn't know that was a thing. Did someone pay her so that she could guarantee they would go to a good home? Did she send the child off with his favorite blanket and food bowl. I can't understand how you can feel that a child is like a pet. How can you dehumanize a person?

In my personal opinion Myka Stauffer is the head entitled Karen on the face of the earth. I can see why she would do it. I've seen a few of her video's in the past. Her house is just too clean for a mom with 5 kids. He didn't fit the vibe of her perfect world. It's not an excuse to give away your child like a bag of outdated clothing.

There are days that Doodle can be an absolute butt hole but I'm not about to re-home my kid. Yeah, I've replace a few iPads in our lifetime. It's part of life. Doodle is messy and I laugh when she looks like Pig Pen from Snoopy's Peanuts. I've learned to love the Chipmunks and their music again. I'm still not cool with Sponge Bob. And I love when she watches the Muppets. I love when I get to share what I love with her and when she shares with me what she loves. That's called being a family. Some things she does and loves I don't care for, but that's okay because she has her own interest. That's part of loving the person you are with. You share your life, love and interest with them.

Doodle is fantastic at gardening. She didn't show that side of her until about a year ago. Am I willing to miss out on parts of Doodle's life? Watching her grow up? Nope. Every day is a new day and as she grows I learn more and more about her. Yes, the house is a bit of a mess. My walls aren't pure white or off white. Her bedroom has purple walls and the ceiling is lavender. I've had clouds on the ceiling that were lights. I've made sensory swings and regular swings. I've adopted a dog for her from the pound. I've shared my food with her and my sweet tea or plexus. We go to the beach together. She's almost like a little best friend and she takes a lot from her father. She will do things to grate my nerves but again, not a reason to re-home my kid like a dog.

I've battled with the school board for my child's rights. Heck I've battled an Army Hospital for her fathers right to life. I fight for what I love. 

Myka's problem is that she's letting money control her life. All of her Instagram pictures are filled with ads. Each picture is "picture perfect". I'm my life I connect with people who aren't picture perfect. I want to see real life. Picture perfect makes me feel uncomfortable. I mean seriously, how many kids under the age of 6 can keep their clothes perfectly cleaned? And their hair perfectly straight. It's all just fake in my book. Messes are part of life. It's who we are as human beings.

That's about as much attention that I can give this trash person. Make people feel important and loved. Don't make them feel like trash cause that just makes you trash. Every life is valuable. People with compassion. Treat them the way that you want to be treated. Autism has blinders on. They don't understand a whole lot and most of the time depending on what type of the spectrum they fall under  they don't understand what's going on and how to articulate their feelings. It's something that has to be taught to them.

You guys have a good day. Don't let hate consume you. Use your energy for more important things. 


Saturday, May 16, 2020

Lock down has been rough Autism

I will admit that quarantine has been rough but not in the way that you would think. So many things flying around. For my business I am the essential worker and can work from home because I work for myself. Throw in homeschooling, trying to create new books, research, learn new programs and trying to create a new line along with the magazine, it's a bit much. Doodle being home and having to monitor her while she works it not easy.

I made Doodle plant a garden. Lots of vegetables are sprouting. I think she's more interested in the pumpkins that she's planted. The plants are thriving and I'm glad about that. We are also working on a few of the things that she's got to accomplish for the next school year IEP. I want to make sure that she masters her tasks faster. She misses school and right now so do I. I was overwhelmed with it at first because getting into the program was hard but leaving out of the program I have a new respect for it. Though I have had to take over the work for the speech therapists, something I have never been good at. When Doodle was doing speech therapy for Easter Seals I would sit behind the two way mirror and watch how Candace worked with her. It was amazing the tricks she would use and I would try the same thing at home. But home is a different environment and was harder to keep Doodle on task. We have been receiving excess work through the portal to help work on speech at home. Summer homework if you will. We received ways to do OT at home as well and I've been using art classes with Cassie Stephens as a way to incorporate a little more OT.

I have been debating about creating a few video's for my website. But that means that I will be in front of the camera and that I'm not comfortable with. But in order to keep my Grumbacher certification I'm going to need to do this. I have a few ideas. Not sure if I am going to be able to do what I want to do without contacting a few companies so that if I teach glow in the dark paintings I will be able too.

As for the isolation, that really doesn't bother me because raising a child on the spectrum, I've been isolating since before she was diagnosed. It was hard taking Doodle out in public. She was fun and cute and all when she was a bitty. As she got older it became harder, all the sounds and commotions. When Doodle was at the school that taught her how to learn and grow they took trips out in the area to learn how not to wander off. How to stay close and how to shop. Loved that! Wish the school she currently goes to does that, but we can't have it all anymore.

Doodle is doing great being at home with homeschooling. Now that home school is done I would have more time to do everything but that's kind of hard cause she gets wild and loud. So I'm concerned about doing video's. I will see what I can do with how I can do it.

So I was watching my news source on Thursday night and found out that there was a new trend going around. It's called the autism and people dance like they are mentally inept. I don't find it funny as my dad had a brother that was completely disabled and depended on my grandparents until his death in his 40's. That was hard on everyone in the family because he was so loved. It's hard on Doodle as she knows with the video's she finds on YouTube that autism is something you call people as the word retarded has been replaced with autistic. I don't think that's funny that people create videos like that.  Calling people names just isn't cool. Using autistic as a slur isn't cool, neither is using the word retarded. You would think as a civilization we would be beyond 2nd grade behaviors.

And what I don't get is how people don't realize how dangerous it is to do what is trending. I know they are looking to become famous in their own mind but coming up with your own thing and thinking for yourself makes you famous. But showing disrespect to others is not how you become famous. That will come back and bite you in the butt. If you do become "famous" eventually, those old video's will be thrown back up in your face. Even if you delete the video no matter what the internet is forever. A 40 something year old mom should not have to be the one to tell you that. But I do spend a lot of time observing the world around me and that includes the internet. There are a lot of autism moms trying to get the video's to stop so I can say that this is not a fight I'm willing to fight on. If it happens in public while I am around then I will say something to their faces but til then I have other battles and a life of my own. I don't have time to be a keyboard warrior for something that will be like oh I've got lots of comments but I don't care what they say.

For the person who actually created the word autistic and autism to be a slur word that would be Paul Watson. People screaming in the streets over Trump being elected president, he said they were autistic screaming. So thanks for that one ya jerk! And that's what spawned all the videos of other people creating videos using the word autistic as a slur word. Doodle doesn't know any better and mimic what others are doing on YouTube. Through isolation she has finally learned that her disability is being used as a slur. And that led to her being sad about her diagnoses when she was 3. So there's that. It's just a lot of damage control on my part because the internet is so large. I don't see anything wrong with autism. There are a lot of people with autism that I look up too and admire. Dr. Temple Grandin, Dan Aykroyd (my favorite actor and writer), Patrick who works at the book store down the street from my house and my own child who I think is the bees knees. They all think differently and that's beautiful to me. They are out there creating new things, shaping the world for the good. The list is longer but I'm not going to bore you with that as it will get lengthy.

So there is my take and those are my struggles. Considering that today is Saturday and not Monday that you are receiving this blog, shows you that time is but a number and it's a number I can't keep up with. I'm not sinking in a little boat, I'm bailing out the Titanic with the way I feel about all the things that I have to get accomplished. It's just not easy and I don't see the Michaels classroom opening up too soon as they have transitioned to Zoom videos for people to sign up for. Some of the videos are dark and hard to keep up with. Not the professionalism that you would expect for anyone doing a class for Michaels. My classroom is closed and being used as a storage room for excess orders. Yes that bothers me. But it bothers me more that Michaels has turned it's back on instructors yet again. Last time that happened, all the instructors were kicked out of the Michaels classrooms and contracts were lost. Many instructors were upset and left even Grumbacher. Many flourished and basically gave Michaels the finger. Creating their own studios and make ore money then when we were in the classroom. So there is no point in being mad at change. Just embrace it and work through it.

Wow, I didn't expect to tackle so many issues today but here I am. On a soap box with my mind just throwing dirt out there everywhere! Let's start a new trend called the neurotypical where we do videos to teach others how to lift people up and give confidence and love and not bring others down.

See you guys on the flip side.