Wednesday, April 20, 2016

My perspective of Autism

Autism is, yes apart of my life but I don't let it control my life. Most of the time I can look past the autism to see who Doodle really is. She's super talented when it comes to art. Yes, she is one of the few children on the spectrum that has that ability. Not all children with autism develop a talent. That's a myth that all children on the spectrum develop talents.

But in all honesty since she was an itty bitty she's had a marker, crayon or pencil in her hands and always under strict supervision. When she was 6 months old and stopped speaking I had her doodling. When Doodle was 5 months old she spoke her first word and that was momma. About a day later she said dada. Two weeks later those were gone and replaced with baby gibberish again. When I first feed her baby food as an itty bitty she refused me feeding her. She was highly insistent on taking the baby spork from my hands and fed herself. It just blew my mind. And she was not even missing putting the food in her mouth.

I've always known there was something special about her. To me she's an amazing kid. And it's very rare I even look at the fact that she has autism. So when I see parents say they hate autism, referring to their child's disability, it really breaks my heart. I wouldn't change Doodle for anything. I have always embraced her autism, just like I embrace my quirks. I'm not autistic but I spend a lot of time trying to remember that yes, she does things differently, she sees things differently.

I'm not perfect and neither is anyone else. When I have a lot of writing to do I twirl my hair and some times in the section of my hair, yeah I have a bald spot. I also have a fantastic hair stylist who corrects that with the style she gives me. No one knows it's there but myself and my hair stylist.

Our children have a different way of doing things and sometimes they can scream at the top of their lungs for hours. Or do the guttural stem that grates your nerves worse then nails on a chalk board. That's the one that drives me up the wall. The out of no where screams, oh those just make me want to rip my hair out! She's only done that twice and it was more or less mimicking one of the kids in her class. The first time she did it we were walking in the neighborhood and we were just passing an elderly gentleman who was painting his mailbox. Out of her mouth pops this blood curdling scream that scared me to death and scared this poor gentleman to the point he dropped his paint brush on the ground. So much for that white mail box if he wasn't finished. I just picked up the pace on my walking and acted like nothing happened. The second time she did it I told her she was going to start loosing some of her prized possessions. It hasn't happened since.

And of course Doodle has been mimicking other autistic kids in class. There is this hand figet thing that one of the other girls in class does. She got popped on her hand for it. She's not going to be doing what is not her stem. And of course this vigorous rocking back and fourth. That came from another kid in her class. She pretty much stopped that on her own when she liked to have knocked herself out while attempting that one on the bed. All I heard was CRACK! as she hit the rail to the top bunk bed while sitting on the bottom bunk. She said, "Hospital, hurt head." My reply was, "You don't need a hospital, you did that to yourself by mimicking what you aren't suppose to do."

If she can stick with her own stems then I'm fine with that and I reward her for good work and good behavior. Dairy Queen is her favorite place to be so she gets an ice cream treat when she can behave. Other then that, autism isn't so rough. Not like it used to be back when she was non verbal and thought everything was funny. I guess life can be pretty laughable once you look around.

And since I've gotten rid of my phone she doesn't elope as much as she used too. For those who are unsure, eloping is wandering off. I try to keep an ear out for verbal stems when in a store if the store has racks and not actual aisles in it and she wants to explore. Other then that she has to stay right beside me at all times if she's quiet or the store is set up like a grocery store and you can't see the next aisle over.

Sometimes when it comes to autism you just have to have patience and gaining your child's trust. Last night I taught a class full of kids. Which is a first because they normally don't come to the adult classes. But hey I don't mind I will teach anyone as long as they are ready to listen and learn. One young man wasn't having any of it. Hey, that sounds a lot like my child most of the time. No supplies and no way to do the work. He was ready to get the heck out of dodge. His guardian handed me the money to get his supplies and I ran out of the classroom to track him down. Once I found him I started building trust with him. At the end of the night he was one of the best kids in the class. So proud of himself for what he did and I was proud of all the kids.

I love what I do. I take pride in my job as a mom to Doodle and an art instructor. I'm changing lives with one hobby at a time. I just look at it this way. She will always have the mind of a child. And she will hopefully always have a heart for the Lord. She's got instant access into Heaven according to the Bible. Which is kind of surprising considering the conversation that I just had with her not 20 minutes ago. Which was a bit odd and out of the blue. I posted this to my social media cause I've already typed it out once and I'm kind of tired of typing right now.

She's listening to Love me like there's no tomorrow by Freddy Mercury. She started crying and I asked her what was wrong. She said, "kill." I asked, "who kill?" She didn't answer. Then she said, "say goodbye to friends." I asked why. She replied with, "he's coming back soon." So I asked who. She said, "Jesus." And of course I reminded her that, he told us he was coming back. This is just out of the blue. Now she's back to laughing at video's, like that conversation didn't just happen.

You guys have a great day.




Wednesday, April 13, 2016

It's not been quiet and Special Olympics Autism

From your end I've been very quiet. From my end, it's been hectic! So here's the deal. My last post I made mention that we were preparing for Science Fair and water color was getting everywhere. A lot of things have been found out that you as parents need to be made aware of for your kids. Parents who read my blog are parents just like myself who push the schools and push your kids. Some of your kids are like mine and are in self contained classes. But before any of that, here is the back story.

I'm the class mom in the classroom. You guys knew about that at the beginning of the school year. Especially, my displeasure with the parents in the class during the Fall/Halloween party. So I had my duties for the class to prepare for Special Olympics. All of which came out of my pocket because well only two parents paid their part for their kids crafting time and seat cushions that I made.

I pulled a muscle in my shoulder and have been battling that pain while trying to get all my work done. I teach art and calligraphy classes at Michael's craft store so I pretty much stay on top of going above and beyond even in pain. FYI frankincense works great for 8 hours of relief but the pain does come back. I was helping out at the school for book fair, something that I was looking forward too this year. And of course we had the writing event at school, Science Fair and Special Olympics.

This is the way that I do things and the way I look at things. Our kids are largely ignored by the school. There are no PTA fundraisers for our class and our kids are pretty much treated as lepers. So there is nothing wrong with me being the class mom, because as I kind of hinted to the teacher I don't mind being the bad guy to make sure that our students have a fighting chance. I'm used to being Doodle's voice and in most cases I can be just as loud and scary as Doodle can be. That's my job as her voice.

Doodle did the science fair, that post will be later on. Not in this blog but what you need to know about has to do with it. I found out though the school news letter that Doodle's grade was doing the science fair. And it was due in a month. When her project was presented, it was the planets because she knows the planets, their order and all the bits of info on them. There was not enough time to try to teach her about a synopsis, conclusions, predictions, you know all the good stuff that goes along with a good science fair project. That would take months to teach her and we only had a month to get this done. Anyways, I got to go see her project in the library with the rest of her grade level. And there is where the problem fell. Seeing all these projects, many that looked the same. So many students doing similar projects. Hold up now! That means that parents and teachers were on the same page of what to do. Why was I left in the dark? Checking some of the kids work, it went all the way back to November! NOVEMBER! Hold up! Why was I not informed? But that's not the best part. I bought all of Doodle's supplies. The tri-fold, the planets, the paints. Everything came out of my pocket. The entire fourth grade got their tri-fold and information sheets of what to do for free! And Doodle was left in her class to be ignored by the school.

Did you know that according to IDEA which is apart of our rights, all children that have special needs are to do as the regular ed students. They have the exact same rights as the normal students and yet Doodle's rights were ignored??? Want to tell me how right that is. If you are a pushing parent like myself, keep that information to heart. Start stalking your childs grade level and make sure you keep an eye on that school news letter.

After Doodle turned in her project, it was only then that the regular ed teacher for Doodle's grade level started submitting work that Doodle needed to do. How do I know this happened? Well, the homework changed. It wasn't what had been coming home. Talking to Doodle's teacher, it was then the regular ed teacher remembered that Doodle was in the school. So that just tells me I have to work even harder now. And yeah, if I have to act all mafia on a school teacher so be it. I will stroke under my chin and get them something to remember. Because, yeah, I'm a jerk of a parent to deal with. I also have a heard of gold and a huge spot in my heart for my daughter and her classmates.

Now back on task. Doodle is out for spring break, I'm not busting my hump to get her to keep up in school with events so the pain in my shoulder has been gone for about a day now. It had to have been the fact that I was really stressing over everything that needed to be done. Doodle penguin walked the 50 meter. The starter gun freaked her out again. And the girl who was to keep up with Doodle well, she did more running on the field trying to catch Doodle then Doodle actually did in the 50 meter. And yeah I was heard on more then one occasion asking why my kid was running wild on field.   She did the ball toss this time around, because we got rained out on that one last year. And the bus got hit by a car coming back from Special Olympics.

As class mom, I had a car load of everything that needed to be in the stands for the kids that were not participating. Figet fingers, seat cushions, incentives, umbrellas and of course water. And I'm kind of glad that I had what was needed because the "adults" watching over Doodle's classmates spend a lot of time on their phones. They didn't even think to bring incentives to make sure the kids didn't make a break for it and stayed in the stands. Kids are happier with small candies when your sitting in stands and can't do much. Figet fingers is also a great distraction. Especially for the screamer in the class.

I had gone to pick up one of the parents that morning that wanted to go but had no ride and since I had already decided that I wasn't going to ride the bus this year I gave her my spot. And I'm really glad I did. After the wreck happened and the school informed me, I went and picked Doodle up straight from the scene and we started spring break early. I didn't have to worry about giving a ride to the parent that I picked up, Doodle's teacher told me that one of them would give her a ride home. I might add that Special Olympics day was my birthday and I was ready to be done with the day! I was ready to spend time with Doodle's father who had come into town just to see Doodle in her event and spend time with Doodle. Okay I will admit it. I was looking forward to him watching Doodle so I could shop without having the beggar with me. I promise you every single store I go into she has to leave there with something! My poor wallet really hates me when I try to window shop and Doodle is with me.

So that's about it in a nut shell. You guys have a great night. I'm going to play some Sims 3 for a little bit and then I'm heading to bed. Tomorrow is another busy day for me as I have to bathe a dog and start working on my 1940's bathing suite. I'm sorry I'm not about to pay over $150's for a bathing suite when I got all my supplies for it for under $40.00 with enough material left over to make Doodle a bathing suite also. All of my work for open house on Saturday at work is done and I'm still looking around at the things to change my web page around too. I think I will tackle that next week, after I get a mani pedi when Doodle goes back to school.

As in the words of Froggy from my frog stuff, Happy Crafting! And you guys have a great night and a great day!

I don't have all the photo's as they are on my camera. But here's some that I took and a friend of mine took. Yeah, she came and stood in the stands with us along with another of my friends.

One of my dear friends, Stacey. She made the shirts. She rocked it out with the shirts! I'm the one with the Creative Lifestyle shades on. 

At least I thought as I was leaving the scene with Doodle in her fathers' truck to take a picture because seriously who would have believed me.

Doodle wanted to wave to the crowd.


Doodle getting ready to throw the ball.