Thursday, May 19, 2016

We've lost one of our own Autism

Our autism community is devastated over the loss of a young man by the name of Kreed. His parents ran the blog Kreed's World: A Complex Journey Through Autism.
We will all miss the smiling boy known as Kreed who enjoyed Five Guys and swinging. How he interacted with his mother. We all saw a bit of our own child in Kreed.

But let me tell you about Kreed's mother. When I first came across the blog two years ago I was in awe! A child on the spectrum who didn't live his life as a shut in. This is one of the reason's why I rebelled and make it a quest for us to get out. For if we and our children are out in the world, that is the easiest way to spread autism awareness. And for my child to learn how to be out in the world.

And she wasn't just taking her son out to restaurants, He was going to concerts! Now that's something I never thought my child would be able to do. But this is a mom who saw potential in her child. And yes, sometimes I forget there is potential in Doodle.

If we don't get our children out in the world and teaching them how to interact with those around us, we will never be able to show the world that our children do matter. Some kids on the spectrum have a voice, some children use their words. others use a dynovox, some like Doodle use a communication book, sign language or their parents try to speak for them.

Thanks to Kreed's mother, Erin and her blog she taught me so much of being an autism mom. What all I was doing wrong and what I was doing right. You see as a community we stand together and learn from one another. Some can really learn while the others sit back and watch.

And though Doodle is not being taught to my standards for her education, all that will change the next school year but at home because I applied what Erin taught me through her blog, Doodle has truly thrived. And though Five Guys isn't our favorite restaurant of choice, we found a home in Dairy Queen. Which just goes to show that our kids can be out in the community. And just recently we have been enjoying Rock n Roll sushi. Doodle is getting pretty good at chop sticks.

So on that note, because I do have so much work to do tonight and tomorrow before I work a double shift at work, preparing for the summer, giving kids something to do and Doodle's essential oil line, I want to say this.

Thank you Erin. Though I'm sure that you won't read this blog. But thank you for sharing your journey and your son with us. You may not realize it but you have taught some of us a lot about ourselves and a lot about our children. I hope that you continue on with posting some of the information that you know.There are still a crop of parents that need your information and your help. We will all miss Kreed, but rest assured there is a little bit of Kreed in all of our kids, when they make us smile. When they are silly and when they are swinging or jumping on the trampoline. For we will never forget the boy who loved the color orange and loved his superman shirts. And we will never forget what Kreed has taught us.

We will never forget Kreed, the true super hero.