Wednesday, December 31, 2014

Sensory issues for tonight and autism

Well, as we all know tonight is the night that parents on the spectrum dread. All the fireworks that will be going off because it's a celebration. Well to me I'm not celebrating the new year. I haven't in all the times that Doodle has flipped her wig because of the booms and the bangs that go along with the celebration. If you have a child on the spectrum that fears the fireworks you know my feelings. The best way to combat this is to make sure that your child has everything that you need to keep sane.

Have your melatonin on hand so that your child won't have trouble getting to sleep from their shear terror. If your child has medication for anxiety make sure that it is filled and ready to go. Doodle is not on any medications. I refuse to drug my child with pharmaceutical drugs. Some parents swear by them however I'm not one of them. I swear by essential oils. Frankincense is my go to oil when I'm feeling stressed or a little under the weather. It's like prozac but in a healthier form. All I have to do is smell it and I become calm and relaxed. It's an instant booster!

Make sure that you have your ear plugs, ear muffs or noise drowning head phones ready. These do make sensory issues with sound bearable. Muffled booms and bangs are easier for a child on the spectrum to deal with.

Also make sure that you have your child's favorite anything handy. Doodle's go to toy is an Ojo doll from Bear in the Big Blue House. This stuffed animal has been with her through all of her surgeries. I am thankful that she has a doll that she holds to tightly through scary situations in life. And also make sure that you have favorite pajama's and underwear and their favorite blanket handy and ready for the night to get through.

Remember tackle the sensory issues first. Sensory issues are what are going to be causing the tantrums and meltdowns. Tackle those and you'll have a smooth night with no problems.

HAPPY NEW YEAR!

Tuesday, December 30, 2014

We don't like you and autism

So what do you do when you are out for break from school. You play outside of course. It's Christmas day and she's really enjoying her day with her new toys. What child doesn't? During the afternoon it was time to play outside. Lunch was picking at her food, which is normal. That doesn't bother me and I will explain why in a later post. this post is what I got to hear with my own ears from next door.

Doodle gets bored with her toys sometimes and trying to limit time on the ipad is key to me. She needs to play outside and have that fresh air. The rain was heading our way, the dark clouds were rolling in. Get the playtime in while you can.

When Doodle climbed into her trampoline that's when I heard those dreaded words. Words that hurt kids feelings and for others like Doodle have trouble figuring out why. She was jumping laughing and clapping having a good ol' time when out from the next yard came 3 kids about Doodle's age scream out, "We don't like you! Hey you! We don't like you!" Well this caught Doodle's attention and she stopped her jumping walked over to net closest to the offending yard and yelled back, "What?"

And with her question they started again, "We don't like you!" Again, Doodle replied back, "What?"

At this moment I had to intervene. She was enjoying herself in our yard. Why should her fun be interrupted by such hurtful words. If I had it in me my blood would have been boiling. I would have jumped that fence chased after those children and tried my best at terrifying them. Letting their parents, grandparents and or guardians to know how despicable they were for teaching their children to hate others. But that is not me nor is it my way. I only speak up when I see a child being beat up or in a fight. That's the time to intervene. Not now. 

Every opportunity in this big scary world is an opportunity to teach. And she needed to learn what to do. I looked up from my library book and calmly stated, "Go back to jumping baby. Ignore them they aren't saying anything important or nice." And with that she went back to jumping. She was having a blast and I'm not going to let someone else shatter her laughter. She had 30 more minutes of outside play, taunting children in the background and I'm proud that she held her own and did as I requested and ignored the little snot heads. It's flu season they could have had snot.

Monday, December 29, 2014

Surviving Autism

What do you really need to survive autism? Well, a lot of prayers to start off with. Remember I'm a Jesus freak! And on the serious side, children on the spectrum like to stem. Don't stop them from stemming. it helps them cope. And yes there is a "time and place for stemming".

You know that song, You spin me right round baby right round. Yeah well that pretty much sums up autism for me. Spinning is one of the coping stems that is Doodle's go to stem. So I made her a swing. You know the swing. The ones that you can find all around in your childhood. The rope and board swing. My swings are made out of 550 cord. You can also use the 550 cord to make survival bracelets. Yes that's the cord I use for the swing. And can Doodle get some height on that one. She will sit down and twist, twist, twist and twist until she gets the cord where she wants it and lift her feet off the ground. The excitement as she spins the uncontrollable giggles and squeals. This is something that she could do for hours if I allow her too. And the best part is this type of swing can be set up anywhere at anytime. Love the stemming swings!

Next up is the trampoline. Whether it's a small trampoline or a large trampoline you need to have a trampoline. Jumping is another form of stemming. Remember that stemming means to self sooth when they are in sensory overload. This is another thing that Doodle likes to do when she's not in the mood to spin. Jumping is a repetitive behavior. It means that it can be done over and over and over again. And who am I to stop that one. I used to have a small trampoline in the house and large one on the outside. Now I just have the larger trampoline outside. If you're thinking that this is one of those things that are way out of your budget try checking your local craigslist ads. They almost always have trampolines for sale and in many cases ones that have only been used once or twice by kids and then left to the way side.

And exercise ball. These overly large balls that hold our weight while we do our sit ups on the trying our hardest not to fall off. Yeah those. Rolling back and forth on one of these exercise balls is the best way to stem during a meltdown.

Play sand. Yes you heard me correctly. Play sand is something that I use as a diversion or redirection. If a meltdown is coming one I use sand. But not just any play sand. Yeah outside play sand is great for outside but what about a rainy day when your stuck indoors and your sand is outside. Well you can use a small plastic tub with some sand in it or you can you kinetic sand. Michaels craft store actually sells this stuff and it is heaven! For different types of sand you might want to work with or learn more about for your child on the spectrum I highly suggest this video from Lucky Penny Shop:  https://www.youtube.com/watch?v=uG8UkempW6k You can actually find lots of great things for your child that you might want to try on Lucky Penny Shop. As LPS Dave likes to test out a lot of toys and yes I mean a lot of toys.

The very last thing in your arsenal should be an ipad or tablet. Can't afford one? Try your local pawn shop. And at some pawn shops you can even do layaway. I got Doodle a tablet from a pawn shop for about $150.00. It has the android app. Bet thing for me is there are a lot of autism learning apps on the droid market. Things you won't find on the ios market. Doodle actually learned all the different emotions that we as humans go through. That's a hard concept for some children on the spectrum, understanding facial expressions. Now she knows understands when I'm happy, sad, mad or excited. You can't teach 24/7 or even for a full 8 hours a day and there is so much information that children on the spectrum need to know. Let technology help you with that. If you're saying but I can do it. Be prepared! It takes a child on the spectrum to do something or be told how to do something over a 1000 times before they get it. Are you really that prepared?

These are all the key essentials to helping your child with ASD. Have fun!

Sunday, December 28, 2014

Anticipation with Autism - Yeah that really happened

There are many days you will see break through and days you won't. The days with the break through are the ones where you want to throw and instant party. Dancing in the streets excitement. One of Doodle's most hated places to be is the library. Why doesn't she like library's? It's a sensory thing. The lighting usually gets to her. There are some sections in a library that are dimly lit and those are the ones that usually put her in sensory overload where she just freezes up, forgets to stay focused and acts like the wild child.

Me, I love the library. It's like a second home to me. All the knowledge and information that can be found on shelves throughout this wondrous place is awe inspiring to me. It's true the saying of all the places you can go! So it seems logical that the main place that Doodle needed to learn to handle her autism is at the public library.

I try to take her to the library at least once a month. It's off the regular schedule. But then again so is a school holiday so we really can't do a weekend schedule. The front foyer of the library is the one and only place that is dimly lit. So it's one of those sections I try to rush through as quickly as possible since we stand there the longest when we get ready to leave.

After a quick 30 minute search through the library for new books that beg to be read, it was time to leave. And the long wait to be checked out began. Luckily for me there was no one in front of us. The problem for me was Doodle wanted to kick off and start running around using her outside voice. Yep, the wild child had returned and it was going to be a short visit as far as I was concerned.

I promptly called her by name and said, "You need to come stand beside mommy and wait patiently like the good girl that you are." She happily skipped up to me and looked right at my face and replied, "With anticipation?" This put me over the moon. It's one of the mile stones I have been waiting for. Never knew I was waiting for it and it's a progression in her autism that I can dance in the street for. How wonderful of her to use that big of a word for such a small little girl and only in the third grade!

Embrace the happy moments in your life. Sometimes that seem so small in comparison but to other parents who have children on the spectrum it's a biggy!

Saturday, December 27, 2014

To hell and back with Autism

Yeah this post is exactly as it reads. About going to hell and back. I'm an entrepreneur through and through. I love it. It affords me the opportunity to be there for my child whenever Doodle needs me. Whether it be from sickness, doctor's appointments, field trips, you name it I drop everything at a moments notice to take care of her.

I've been through hell in what was my marriage and yeah I put up with a lot of verbal abuse. Knowing that I should have never taken it. Realized that one when Doodle was calling me stupid. And when I would cry she was comforting. Don't cry momma, you're beautiful. The stupid is what was like a dagger to the heart. I heard enough of that out of her father during almost 13 years of marriage. And out of my husbands mother I heard enough of how I wasn't good enough for her son or his children from his previous marriage. And since I was taking care of my mother in law who had Parkinson's, Doodle with her autism, my husbands children from his previous marriage as he had full custody and my husband who made the Army his career. I thought I was enduring all the verbal abuse because I loved him. No, I was taking it because I was allowing myself to be weak.

I don't hear much from Doodle's father anymore and frankly I like it better that way. I am the woman I used to be. Carefree taking care of myself. Well, not only myself but Doodle as well. And we have plenty of help. The Lord promises us that he will collect our tears in a vessel. And believe me that is one huge vessel that collected my tears. I'm stronger. Not in the physical sense but in the mental sense. I have my power back.

The reason that I am writing about all of this right now is because in 2015 I will not be taking this baggage with me. I'm dropping it off here. Along with the way he dropped his wife and his special needs child. In an message on my ipad. Thanks for the text stating that I was not allowed to come back home. And right after I had left my best friends mother's funeral.

And just like when Doodle was diagnosed, don't feel sorry for me. I already have a father on earth and a father in Heaven. I don't need 2 fathers on earth. One cheering for me to succeed and one hoping that I fail refusing to let me go anywhere. Acting as if he is the best thing that ever happened to me. Um, no the best thing that ever happened to me was when I met Jesus Christ and accepted him in my heart as my Lord and Savior. I can hold my head up high and no longer have the fake smile on my face. Yeah I'm still known as Smiley by my new friends down here but now I smile because I'm happy in life and happy to see my friends cause I know we will be laughing and having a good time waiting on the kids to get out of school.

My friend used to tell me that God doesn't want me in bondage and my marriage was bondage. And that's why my business was not as successful as it should have been. Now it's a new day and a new time. I know what's important and what isn't. If it's not my businesses or my immediate family who took me in to keep Doodle and I from being homeless, it doesn't matter to me. And yes I said businesses because I consider the video show I do with my best friend a business. My publishing company is slowing rising out of the ashes like a phoenix. I do a purse and jewelry business with my best friend and yes I even sell weight loss products. If you are trying to be an entrepreneur you need to have at least 2 businesses other then the business that you created. WHY? That's just too much to handle. You need a back up. Learned that the hard way when everything that I owned for my publishing company was stripped from me in a single breathe. And no I'm not allowed to go back and get it all. The stories and novella's that were left behind in my office. I can promise that will never happen ever again. No man other then God will take care of me. If this is the way that men treat their families now a days they are not worth wasting my breath on. Or my time. I need that time for my Lord, my daughter and my businesses. I'm not rolling in the dough and I'm still scratching the bottom but I can promise you God will lift me up just like he lifted me out of my depression.

Life is fantastic. I'm happy no matter where I don't look for trouble and trouble refuses to have anything to do with me. I'm learning to love myself and that's all that matters to me. Being me, laugh, love and live.

Friday, December 26, 2014

Change to the Autism schedule

Yes, I have mentioned this in a previous post and yes I am going to cover it today. Change to the environment is one thing that all parents on the spectrum dread. Dread it with a passion. It the difference between continuing to progress or the start of regression.

For Doodle she has already had a regression. I blame the school on that one. She wasn't taught a thing. Couldn't read couldn't write and I had been trying for years to get her to read. But all that school would do was basically babysit her. I'm guessing that they really weren't capable of teaching special needs children because any special needs child that went there all had the same thing going for them. Nothing, no hope and no chance. And because Doodle wasn't in an environment where she was being taught I ended up with a child that used to love seeing me at school. A happy smile and hug for her mommy. That's what every parent wants from their child in grade school. She became a child who never wanted to see me. I began to feel awkward when I would travel with the school to field trips. And every time I came to the school Doodle had a note book in her hand and all she would do was doodle. Her art was suffering all the therapy she had done in the past years were out the window and her speech was gone. One day Doodle got off the school bus and she smelled awful. Literally like butt and she was wearing someone else's clothes and underwear. That was the straw that broke the camels back. IF she had had an accident at school why wasn't her wet clothes sent home? Well, that was the first time Doodle got a bath the moment she got home from school. The smell was unbearable. But that's what you get with the school that you're zoned for. I'll admit it. I cried and I prayed. My child wasn't being given her true potential.

That night a storm rolled through and with it tornado's. Our area was the hardest hit. The school was wiped off the map. Now I used to refer to Doodle as the wild child. This was a time in her life she was the worst in behavior and it's was the worst of the wild child phase, if you want to call it a phase. But there was another issue that was a factor. Storm debris. For a child on the spectrum it could seem like no big deal. We were basically living in conditions that were equivalent to a war zone. And for a child with asthma it just compounded the issue. Under those circumstances they let us transfer Doodle to a school 45 minutes from our home.

At the new school she excelled. She learned to read, to do math, to write. It was a dream come true for me. She had potential and the teachers at her new school saw and new it. I was truly blessed.

When Doodle and I moved over the summer this year. And it wasn't a move I condoned on my part it caused another regression. A regression I was not going to take. I refused. She developed PICA. And that's the gross one. I stood firm. It was the only time that I had refused to roll over and let the world take a dump on me. I held 5 IEP meetings in the first month of school. I started turning our bedroom into a sensory room.

Implementing rewards during the week helped. A slushy on Wednesdays, yogurt on Friday's and if she was really really well behaved at home and school I would take my car through the car wash. This is the equivalent of seeing going to Disney Land to her. Nothing will make the child happier than a car wash. And in all honesty this is what helped to start the progression again stopping the regression in its tracks. Is it worth it? HECK yeah!

Thursday, December 25, 2014

Keeping family traditions with Autism

Since I am back in my hometown Doodle has been used to a certain Christmas tradition every year since she was an itty bitty. This year I'm not so sure if I'm going to keep the tradition of hot chocolate with whipped cream on top. If was that my now ex would cook the meal we would have later in the day and my job was the big breakfast. Which I promptly got up at 5 in the morning to start. Of course I would spend most of my night wrapping all the gifts for everyone that would appear under the tree with Santa's gifts. Every year I would stay up until 2 or 3 in the morning wrapping because everyone was good and asleep.

This year all I did was purchase the gift. My wonderful mother took care of wrapping them for me. So that is one stress that is off my back. As for making breakfast I'm not sure if I'm going to bother with that one. Might still do the hot chocolate but it isn't going to be fancy as I know the only thing Doodle will want to do the moment she wakes up is tear into gifts. That's the way it's always been. No child ever wanted to eat a good hot meal when they woke up. They only cared about the gifts. Maybe in a couple of years when I am back on my feet and Doodle and I have a house of our own that's more customized for her sensory needs will I start that tradition again. It did really mean a lot to me. I took great pains and joy trying to make the entire family happy. And since I know that Doodle will only want to tear into gifts then let her have her joy and let mommy have her break.

And since it is Christmas and I will be discussing Jesus and all the wonderful things he has done for us starting with his birth this blog will be shorter then normal.

Have a Merry Christmas and happy Holiday everyone!