I discovered that the reason why Doodle was acting up so much was that she had a yeast infection and now she is feeling much better since she's been on medication.
Fast fact, a lot of children on the spectrum suffer with yeast infections. And yes this can cause a lot of their horrible behaviors. Behaviors that feel as if you are living in a nightmare. I know how Doodle is suppose to act. As her parent I am suppose to know my child, what she likes what she hates and what makes her tick. I know when she wakes in the middle of the night but the hardest is knowing when she hurts. That could be stomach pains or it could be something else. She's normally so happy that even if she gets hurt she will only show pain for a single moment. But the behavior is something that should be a tale tale sign. She now has a new pediatrician where we live and we are learning about her and she is learning about Doodle. It's hard because our old pediatrician knew Doodle since birth. Worked with us to get services for speech and occupational therapy. I miss our old pediatrician but that's okay. We are in a new chapter and we shouldn't be afraid of change in our lives.
Living with autism is not easy as much as people would like to think it is. I now have to deal with a child who has become obsessed with other children on the spectrum and loves watching YouTube videos about them so she tries to get away with they do such as throwing tantrums and biting herself. Are we seriously going to another form of self harming? Not on my watch we aren't.
I have a business to run and a child that needs to be hugged and loved on even when she doesn't want to be touched. That was always an issue with Doodle when she was a bitty. She never wanted to be touched. She was a NICU baby for 2 and a half weeks. And that was so hard being a new mom and not being able to hold my baby or rock her. I wasn't able to sing to her, kiss her or even touch her. She had to be on pure oxygen because she had a bowel movement in the womb so her lungs were compromised. She was the baby in a bubble. I couldn't even touch her little hands. All I could do was look at her inside her containment and long to touch her. It was like being at the zoo and watching from behind the glass. It was so oxygen could be pumped into her bubble. The only ones able to touch or hold her were the nurses. It was so hard.
So yeah, she's come a long way. And she's my only baby, who I want to be happy at all moments of the day. There were so many tears shed throughout her life and so many prayers lifted up for her. I used to put her to bed and when she would finally fall asleep I would lean over her pray over her and whisper in her ear that I loved her. One night clear as day she said I lub ewe. And that was the best thing in the world to hear come out of her mouth. She was still non verbal at that time. So I knew that if she had the potential to speak when she was in REM sleep she had the ability to change the world and it was my job to unlock her potential. To push her and mold her.
The world will never conform to her and her disability but we can be somewhat of normal when she is out in public. I love my child more then anything in the world and I will support what she wants to do or be. If it's to be a doctor I will go broke making that a possibility. If she wants to be an artist I will do everything in my being to make it her life's work. I'm an artist but I'm also a creative. Which is why my company is called JSNcreative. And like my title we have to Just Start Now. Don't let anything hold you back. Don't let anything stand in your way. Be the locomotive in the video Breakthru by Queen. Move the barriers. Don't let anyone stop you from being the best for your child.
I'm a parent most teachers hate but I'm also the parent that a lot of teachers love. I'm the involved parent. I can't help my child or her teacher without that support system. And we all have to be on the same page.
At this point I just can't write anymore. As I type this there are so many changes taking place with my Grumbacher career that is leaving me devastated. There is so much going on in our lives and so many changes that are taking place as I type this. I will see you guys on the flip side.
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